WHAT IS SICKLE CELL?
Sickle Cell Disease is a genetically inherited blood disorder prevalent among people of African, Caribbean, Central/South American, East Indian, Middle Eastern, Mediterranean, Asian and Southeast Asian ancestry.
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There are more than 400 unusual hemoglobin genes associated with sickle cell disease and other hemoglobin variants
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WEB RESOURCE

MAYO CLINIC: Sickle cell anemia is an inherited form of anemia — a condition in which there aren't enough healthy red blood cells to carry oxygen throughout your body
>>>read more

WebMD: Combating Sickle Cell Video

WebMD: Sickle Cell Research Video

SOCIAL NETWORKS
SCTPN Facebook Group SCTPN on My9News

DONATION INFORMATION

Monetary Donations | Planned Giving | Donor Advised Fund | Charitable Remainder Trust | Charitable Lead Trust | Vehicle Donation Electronics & Peripherals | Donate Goods | Donate Organs | Tax Benefit | Donation receipts | Charitable Events

Disclaimer:   The Sickle Cell/ThalassemiaPatients Network is not a financial planning institution, it does not warrant orguarantee the accuracy, quality, completeness, or validity of any information itprovides. All information has been obtained from sources believed by SCTPN to beaccurate and reliable.
Please consult your financial planner regarding investment options and your tax advisor for specific tax advice
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Planned Giving

There are great advantages to developing a plan for making large charitable contributions to a charity -- a variety of donor options and tax benefits. Planned giving allows you to separate part of your income that is vulnerable to taxes into funds that offer financial support to social programs in your community. That income once targeted for taxes can be converted into social capital with tax saving advantages.

The vehicles listed below give you several effective options for income and estate planning. Working with a financial consultant can help you assess your current holdings, immediate and long-term financial objectives, maximize the value of your assets and your charitable goals

(DAF) Donor Advised Fund

A Donor Advised Fund allows you to set up a philanthropic account by making one simple tax-deductible donation to the public charity offering the DAF. The initial contributions may be in the form of cash or appreciated stock. With a donation as little as $5,000, DAF account for donors receive many of the benefits as a private foundation without the legal complications or expense of set up. Assets are pooled and professionally invested so that they may appreciate (tax-free) to increase amounts available for giving. SCTPN focus on investment options that are socially responsible and allow idle assets that have a positive social impact. The DAF makes grants to our and other charitable recipients based upon donor recommendation. Some DAFs also provide access to expert analysis of non-profit charities that donors may use to inform their giving. Donors will receive reports on the growth of the account and grants made to the organization. For people who want to give money now but want to wait to decide where it will be distributed, this may be a good tool to use.

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Charitable Remainder Trust

A Charitable Remainder Trust is a contribution of cash, securities or real property made to an irrevocable trust. You are paid an income annually or more frequently for life. When the trust terminates, the assets are distributed to one or more charitable organizations of your choice. Upon creation of the trust, you will obtain a current income tax deduction for the value of the charity's interest in the trust, even though the charity has to wait until the trust terminates to receive the donation.

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Charitable Lead Trust

A charitable Lead Trust is established with a contribution of cash, securities or real property to a trustee.   The trustee pays income to one or more charitable organizations for a number of years or for the life of the donor. When the trust terminates, the trust assets are distributed to the donor or their beneficiaries. If the remaining assets are paid to the donor's children or other chosen individual, the appreciation of the assets during the life of the trust is free of estate or gift taxes. Additionally, a charitable gift-tax deduction is earned for the value of income paid to charity during the term of the trust.

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Vehicle Donations

Cars, trucks, boats and planes can be donated through our partner, The Car Program. www.donateacar.com/charity/sctpn.html

Car Donation Program FAQs

When you contact SCTPN in regard to a prospective donation, you will be directed to complete our Vehicle Donation Form online and submit it bye email or download the form, complete it and fax it to the Car Program at 916-631-1307, 916-631-1308 or 916-631-4336.

If the Car Program is unable to accept the donation, they will contact you as soon as possible to respectfully decline the donation – usually within 24 to 48 hours.

If the donation is accepted, a towing agency will call the donor within four business days to schedule an appointment for pick-up. In addition, Car Program will make a customer service call to the donor on the 4th business day.

The tow driver will distribute the donation receipt and will pick-up the car, keys and title. The donor should retain the donation receipt for their records. It is an important document necessary for any available federal income tax deduction.

For tax purposes, the IRS allows the donor to assess the fair market value of their donation as long as that value does not exceed $5000. If the value of their donation exceeds $5000, then we will make arrangements to provide you with a donation receipt, a written appraisal and an IRS Form 8283 for your tax purposes.

After the car is picked up, it will be sold at a vehicle at auction or directly to a salvage yard. Normally, proceeds from the sale of a vehicle are received within 60 days of the vehicle being picked up. Car Program remits proceeds twice monthly along with a complete accounting.

If you have any question regarding your donation or need to request a copy of your receipt our customer service center seven days a week at 1-800-513-6560.

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Electronics and peripherals

New York City residents can be donate computers, monitors, scanner, keyboards and other peripheral items through Share the Technology: www.sharetechnology.org. Donated computers will be given to children and young adults with hemoglobinopathies who do not have computers at home or have outdated systems.

Computer FAQs

What type of computers are accepted?

Both PCs and Apple computers are acceptable. Desktop systems, laptops peripheral items, cables, original operating software and manuals are needed.

What are the minimum system requirements?

The minimum requirement is Pentium 3 or higher for a PC compatible and G3 or higher for an Apple.

What do I do before donating my computer?

Before donating your system remember to do these things:

  1. Erase your personal files, but leave your operating programs on the hard drive.
  2. Take the software licenses and tape them to the case. Clean your old keyboard with a spray on-wipe off cleanser.
  3. Include software, packaged and sealed accessories, any cables and parts in working condition.
    (Tips from www.techtv.com)

Ink and toner cartridge

Empty ink and toner cartridges can be forwarded to the recycling programs listed below.   Just log onto the web site, select the option to order bags and input SCTPN's account numbers:

www.empties4cash.com - Account # 41624

www.recycle4charity.com - Account # 57555

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Donate Goods

The donation of office supplies and equipment are equally appreciated.   If you have a membership with any office supply retailer large or small, you can place an order online or by telephone to be shipped to our office.

Items needed :

  • Copy paper   Manila folders
  • Pens   Blank CDs
  • Pencils   Flash drives
  • Markers   Paper clips
  • Note pads   2" Ring binders (White)
  • Envelops (#10 and letter size)   Loose leaf paper
  • Color copier   Photograph paper
  • Laser printer (2)   B/W copier

Donate Organs

Transplantations save lives, but only if you help. All you need to do is say yes to organ and tissue donation on your donor card and/or driver's license and discuss your decision with your family.

New York Blood Center

The New York Blood Center (NYBC) has a Precise Match Program to help ensure that people who are chronically transfused (e.g. sickle cell disease, thalassemia, leukemia, etc.) will have access to blood products precisely matched to each person whenever they need it. For additional information call NYBC at: 800-993-2526 or log onto: www.nybloodcenter.org/index.jsp

Individuals living thalassemia and many with sickle cell disease (a large number of the recipients being children) require regular blood transfusions to maintain good health. Hospitals specializing in the treatment of hemoglobin disorders participate in the NYBC Precise Match program.

National Kidney Foundation

Information about organ and tissue Donors and transplant recipients.

National Marrow Donor Program

Your participation in the marrow donor program will give patients with life-threatening blood diseases a second chance at life.

American Bone Marrow Donor Registry

A small blood sample will tell if you can save a life.

TransWeb

All about transplantation and donation.

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Donor FAQs

Will SCTPN protect my privacy?

SCTP guarantees that we will not sell, rent, or trade your personal information to anyone outside SCTPN. In addition, you have the option of donating anonymously so that SCTPN will not receive information about you without your permission. Please read more in the JustGive Privacy & Security Statement and the NetworkforGood Privacy & Security Statement.

What are the advantages of donating online?

Most of us have the desire to help others in need but often hesitate because we don't have the time, knowledge, or trust to give to a specific cause. SCTPN is working to make it easier for you to make an informed choice to help and actually make a difference by providing you with the tools you need to investigate our charity through GuideStar.org and by providing two secure, industry respected options for you to process your contribution -- JustGive and NetworkforGood. We also provide you with an account of your Annual Contribution Report, allowing you to keep track of your donations throughout the year.

Tax Benefit for Charitable Contributions

The chart below gives the tax bracket and deduction amount for a $100 donation made by a single person. The amount of your deduction depends on your tax bracket and whether you file as a single person or jointly. The instructions on the 1040 Form will help determine the exact amount.

Tax Bracket

Donation Amount

Benefit

Out-of-Pocket Cost

10%

$100

$10

$90

15%

$100

$15

$85

25%

$100

$25

$75

28%

$100

$28

$72

33%

$100

$33

$67

35%

$100

$35

$65

Note:   Not all donations to non-profit organizations can be claimed as charitable deductions, even if the organization is registered as a nonprofit. Check with the Guidestar.org or the IRS on whether or not an organization can receive charitable deductions.

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Receipts for Donations

The IRS does not require receipts for cash donations under $250. Cash contributions of $250 or more requires a statement that must be sent to the IRS with your tax return. However, it is a good idea to keep receipts for all of your charitable contributions.

Donors who make annual cash contributions over $250 will be provided with an Annual Contribution Report to help make itemizing your taxes easier.

Will I get a confirmation that my donation has been received?

By utilizing the JustGive or NetworkforGood donation engines, you will automatically receive a confirmation notice once you complete the donation process.

How much of my donation goes to my charity?

Ninety-seven percent (97%) of you contribution is forwarded to our charity. The donation engines deduct 3% from all donations to cover the transaction costs.

Can I deduct my volunteer time and services?

You cannot deduct the value of time or services to a tax-exempt organization, but you can deduct out-of pocket expenses such as transportation costs (mass transit fare and gasoline) and purchasing a uniform.

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Charitable Events

For a charitable event, only a portion of the ticket value is deductible. The charity hosting the event will be able to identify the exact value of the benefits for each event.

Disclaimer:   The Sickle Cell/ThalassemiaPatients Network is not a financial planning institution, it does not warrant orguarantee the accuracy, quality, completeness, or validity of any information itprovides. All information has been obtained from sources believed by SCTPN to beaccurate and reliable. Please consult your financial planner regarding investment options and your tax advisor for specific tax advice .

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SCTPN, a 501 (c)(3) tax-exempt organization, provides education, advocacy, referral services, and support for individuals
and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.